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Product Details
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Product Description
Review
"...serve(s) as a useful introduction to clinicians...dealing with ALS...as well as a guide to patients and families." -- Physical Therapy, January 2002
You couldn't ask for a more comprehensive (book) than this latest volume from Demos. -- Quest, Vol. 8, No. 4, 2001
You couldn't ask for a more comprehensive (book) than this latest volume from Demos. -- Quest, Vol. 8, No. 4, 2001
Book Description
ALS, also known as "Lou Gehrig's disease", cannot be cured but it can be treated. A great deal can be done by physicians and other health care professionals to treat the symptoms of ALS, to improve the patient's quality of life, and to help caregivers and families to cope with the disease. This extensively revised and rewritten new edition is specifically addressed to the needs of patients and families living with the reality of ALS. Since publication of the first edition of this book, the understanding and treatment of ALS have changed dramatically. The many puzzles of this disease are being steadily solved. One cause of familial ALS has been identified, and the mechanisms of motor neuron cell death are much better understood. The FDA has approved riluzole, the first drug available for the treatment of ALS. Additional drugs are being tested and others are on the horizon. This comprehensive guide covers every aspect of the management of ALS. Beginning with discussions of clinical features of the disease, diagnosis, and an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance. Regardless of their views about long-range events, everyone dealing with the reality of ALS wants to know what to do now. Issues that they have or will need to deal with include: whether to participate in therapeutic trials the role of rehabilitation treatments the use of riluzole (Rilutek), as well as new experimental preparations and drugs that have been approved for some other disease and are being used in ALS
Inside This Book
(Learn More)
First Sentence
With those words, Lou Gehrig announced his retirement from the New York Yankees on July 4, 1939, at the age of 36, ending one of the most remarkable careers in the game of baseball. Read the first page
Front Cover | Table of Contents | Excerpt | Index | Back Cover
With those words, Lou Gehrig announced his retirement from the New York Yankees on July 4, 1939, at the age of 36, ending one of the most remarkable careers in the game of baseball. Read the first page
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Concordance
Browse Sample PagesConcordance
Front Cover | Table of Contents | Excerpt | Index | Back Cover
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Customer Reviews
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Most helpful customer reviews
5.0 out of 5 stars
It's a 5,
By "als_daddys_girl" (Franksville, WI United States) - See all my reviews
This review is from: Amyotrophic Lateral Sclerosis: A Guide for Patients and Families, Second Edition (Paperback)
This book has helped our family tremendously with understanding what is occuring and how to stay ahead of the game dealing with ALS. Ideas shared in the book are practical and helpful. A good read for families dealing with ALS...especially care givers.
5.0 out of 5 stars
Must read for newly diagnosed and families.,
By
This review is from: Amyotrophic Lateral Sclerosis: A Guide for Patients and Families, Second Edition (Paperback)
My mother was diagnosed with ALS in January 2001. Unfortunately, it took me 4 months as "Buyer Waiting" to obtain a copy of this book. By the time I received the book, my family and I already felt besieged by the challenges of rapidly advancing bulbar ALS. While I cannot speak for what this book might mean for the ALS patient, I can attest for what it has meant to me as caretaker. As such, I found my time and attention limited to each immediate crisis at hand. Fortunately, the book is arranged in such a way that you can skip around--reading whichever chapter or chapter portion pertains to your current dilemma. Sadly, I lost my Mom on Easter Sunday 2003. Probably, I only read 50 percent of this book before her passing--but that 50% did help me navigate the turbulent challenges of this disease and connect emotionally with my mother on a level that otherwise might not have been possible once she lost her ability to communicate. While this book is not an end-all resource within itself, it is a good place to start for the newly initiated.
Most Helpful Customer Reviews on Amazon.com (beta) Amazon.com:
4.4 out of 5 stars (9 customer reviews) 31 of 32 people found the following review helpful
5.0 out of 5 stars
Must read for newly diagnosed and families.,
By S. Hansen - Published on Amazon.com
This review is from: Amyotrophic Lateral Sclerosis: A Guide for Patients and Families, Second Edition (Paperback)
My mother was diagnosed with ALS in January 2001. Unfortunately, it took me 4 months as "Buyer Waiting" to obtain a copy of this book. By the time I received the book, my family and I already felt besieged by the challenges of rapidly advancing bulbar ALS. While I cannot speak for what this book might mean for the ALS patient, I can attest for what it has meant to me as caretaker. As such, I found my time and attention limited to each immediate crisis at hand. Fortunately, the book is arranged in such a way that you can skip around--reading whichever chapter or chapter portion pertains to your current dilemma. Sadly, I lost my Mom on Easter Sunday 2003. Probably, I only read 50 percent of this book before her passing--but that 50% did help me navigate the turbulent challenges of this disease and connect emotionally with my mother on a level that otherwise might not have been possible once she lost her ability to communicate. While this book is not an end-all resource within itself, it is a good place to start for the newly initiated.
11 of 11 people found the following review helpful
4.0 out of 5 stars
Excellent Resource,
By Aman Bawa - Published on Amazon.com
This review is from: Amyotrophic Lateral Sclerosis: A Guide for Patients and Families, Second Edition (Paperback)
I used this book religiously before my dad passed away from complications due to ALS last July. The book was very helpful to understand what was happening and what was coming. As depressing as it all is, it was better to understand the situation so I could do all I could to help my loved one. I was just looking at my copy the other day and the amount of highlighting in it and stickies hanging out of it reminded me of how used the book was.
8 of 11 people found the following review helpful
5.0 out of 5 stars
It's a 5,
By "als_daddys_girl" - Published on Amazon.com
This review is from: Amyotrophic Lateral Sclerosis: A Guide for Patients and Families, Second Edition (Paperback)
This book has helped our family tremendously with understanding what is occuring and how to stay ahead of the game dealing with ALS. Ideas shared in the book are practical and helpful. A good read for families dealing with ALS...especially care givers. |
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