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Beyond My Control: One Man's Struggle with Epilepsy, Seizure Surgery and Beyond
 
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Beyond My Control: One Man's Struggle with Epilepsy, Seizure Surgery and Beyond [Paperback]

Stuart Ross McCallum
5.0 out of 5 stars  See all reviews (1 customer review)
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Product Description

Stuart Ross McCallum shares a true account of his battle with epilepsy-beginning with the peculiar sensations he experienced as a teenager that led to his diagnosis and concluding with his eventual recovery from a temporal lobe lobectomy.

McCallum vividly describes his twenty-year journey of living with epilepsy and how this unpredictable disease has not only impacted his life but the lives of everyone around him. For years he operated a business and managed his staff while battling an ever-increasing number of seizures. As his condition worsened and his postseizure responses became more intense, he was often prone to violent outbursts that threatened his safety as well as the safety of those in his inner circle. McCallum shares how the perception of the disease and the socially unacceptable behaviors that occurred as a result of his seizures eventually forced him to risk everything-he made the life-altering decision to undergo two brain operations that he hoped would provide freedom from a life of instability, danger, and stares from strangers.

Beyond My Control provides an honest, emotional look into a highly complex and often misunderstood condition and how one man's perseverance helped him break through the darkness to find hope on the other side.


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2 of 2 people found the following review helpful
5.0 out of 5 stars triumph over adversity, Mar 4 2011
By 
on the prowl "cat" (Vancouver, BC Canada) - See all my reviews
This review is from: Beyond My Control: One Man's Struggle with Epilepsy, Seizure Surgery and Beyond (Paperback)
Stuart Ross McCallum's 'Beyond My Control' is a true story of triumph over epilepsy. In his revealing account, he shows the extreme behaviour changes he experienced, pain and struggle. He seemed keenly aware of how his behaviour affected others. He wanted to protect others in case he got out of control, but he also made sure others understood his seizures were temporary and he would be back to normal soon enough. Apologetic and polite, he cared about other people's perceptions or comfort level.

When the medication stopped working, the result was sometimes the return of seizures. I found it remarkable to read about his determination and motivation to rise above his disorder. He didn't seem to give up hope as he pushed through adversity. He took a chance to undergo various tests and surgical treatment. His courage is to be applauded. His family was very supportive.

I recommend this book as insightful and inspirational. Stuart has strength of character and resolve and writes in a concise, sincere, genuine manner.

Sandra Yuen MacKay (author of My Schizophrenic Life: The Road to Recovery from Mental Illness)
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Amazon.com: 5.0 out of 5 stars (35 customer reviews)

13 of 13 people found the following review helpful
5.0 out of 5 stars Pure Reading Enjoyment, May 5 2009
By Dee Marie - Published on Amazon.com
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This review is from: Beyond My Control: One Man's Struggle with Epilepsy, Seizure Surgery and Beyond (Paperback)
I originally purchased "Beyond My Control," by Stuart "Ross" McCallum, thinking it would be a casual, yet interesting read. However, once I started reading the first chapter, I literally could not put it down until I had finished the book.

Although the book is a biographical, and at times harrowing tale, of Ross' struggles to find normalcy within an anomalous world of coping with epilepsy...the story flows with the feeling of a well-organized novel, rather than a dry, retelling of factual events.

Upon finishing his story, the realization that Ross survived his life-struggling ordeal (and lived to write about his experiences in an intellectual, often humorous manner)...is a miracle in itself. His story is more than an account of how Ross and his family, friends, and co-workers dealt with his epileptic episodes; it is also a fascinating look into the often misunderstood side-effects of the illness.

Ross' story is filled with heartache and hilarity; written in an educational and entertaining manner. "Beyond My Control" is a must-read, not just for the informative aspects of coping with a disabling illness, but more importantly for the pure "reading enjoyment" of his story.

9 of 9 people found the following review helpful
5.0 out of 5 stars An Inspirational Journey, Dec 12 2009
By J. Knox "JK" - Published on Amazon.com
This review is from: Beyond My Control: One Man's Struggle with Epilepsy, Seizure Surgery and Beyond (Paperback)
Epilepsy is a condition I've read personal accounts of in the past, most of which have been vague or difficult to fully grasp; it seems there are few more difficult topics to (successfully) communicate than a neurological disorder and many personal a...more Epilepsy is a condition I've read personal accounts of in the past, most of which have been vague or difficult to fully grasp; it seems there are few more difficult topics to (successfully) communicate than a neurological disorder and many personal accounts end up vague or overly-clinical. This is why Stuart McCallum's book is so incredible.

While reading Beyond My Control, I felt the transcendence of a good book--it was as though I entered another world, a world in which I felt I understood what it was like to be at the mercy of this confounding neurological disorder. Stuart McCallum vividly recalls his life before his diagnosis and the confusion of Epilepsy's onset, but he doesn't cower. In fact, Stuart doesn't spend his pages wallowing in self-pity or asking "why me?" but instead inspires his readers with his courage and strength.

This is a story about one man's battle with Epilepsy, but it is a story for anyone who knows what it feels like to have life uprooted in an instant, who know the shock and helpless feeling of entering the unknown, but who refuse to be defeated by it.

8 of 8 people found the following review helpful
5.0 out of 5 stars Thanks for Your Story Stuart!, Feb 4 2009
By R. Owen - Published on Amazon.com
This review is from: Beyond My Control: One Man's Struggle with Epilepsy, Seizure Surgery and Beyond (Paperback)
McCallum's story is remarkable and completely engrossing. Reading it is much more like hearing a good story being told rather than reading it on the page. It was an excellent education for me -- to get the perspective that he communicated. I have no personal experience with epilepsy, but I felt that I could relate to his story. It is not an uncommon experience among human beings to find yourself in a situation where you have no control. I think it is an experience we all share, and knowing that helps us all understand and identify with what it means to struggle with epilepsy. He does an amazing job of bringing humor into a decidedly not funny situation, at one point, comparing his behavior to Basil Fawlty's. His pre- and post-surgery experiences were harrowing, getting through that part is hard to imagine. The short-term and long-term support that he received from other people was truly amazing -- and his story makes it so clear how crucial that support was. To sum it up, I'm very glad to have read it.
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