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From Chance to Choice: Genetics and Justice
 
 

From Chance to Choice: Genetics and Justice [Hardcover]

Allen Buchanan , Dan W. Brock , Norman Daniels , Daniel Wikler
5.0 out of 5 stars  See all reviews (3 customer reviews)

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There has been some reluctance in this country, based on the horrific consequences of past eugenics movements, to consider fully the societal impact of recent and future genetic investigations. The authors (professors of philosophy and medical ethics) attempt to develop a moral framework for the theoretical issues relating to genetic interventions. The book aptly illustrates the complexities of these concerns, exploring current ethical theories to determine if they can adequately address these tough issues. Equal opportunity, distributive justice, inclusion, and reproductive freedom are discussed in depth in an analysis of how these concepts relate to genetic technologies. While the authors freely admit that they do not have all the answers, they do conclude with some broad recommendations, particularly regarding the role of the state in genetic policymaking. Prior knowledge of philosophical theories will be helpful for readers of this scholarly work. Recommended for upper-level and graduate research collections.
-Tina Neville, Univ. of South Florida at St. Petersburg Lib.
Copyright 2000 Reed Business Information, Inc.

Review

"...an engaging and provocative read." Canadian Bulletin of Medical History

"From Chance to Choice provides a much needed discussion of the fundamental ethical and social issues raised by the application of the new genetics to human beings...a style that combines complex analysis with great readability." Helga Kuhse, Bioethics

"From Chance to Choice: Genetics and Justice is a very admirable book, much deserving of the praise that is has already received... this is a very succesful volume. The authors have managed to raise an enormous range of issues related to genetic justice with great clarity. Further, they have succeeded in providing the reader with the conceptual tools necessary to begin to address these questions more fruitfully." Medical Humanities Review

"Amazingly, the authors approach this millenial philosophical issue without losing humanity. Their collective style of writing is a joy to read, and their work reads more like poetry than philosophy. Like poetry, too, their words are worth returning to several times, to unearth intentionally embedded subtext with enhanced meaning. Their book will be cited often." New England Journal of Medicine

"In a book which is notable both for the breadth of the questions posed and the depth of the potential responses, these four distinguished moral and political philosophers provide a much needed and well reasoned ethical compass for future journeys into genetics and genomics." Francis S. Collins, Director, National Human Genome Research Institute, National Institutes for Health, Washington, D.C.

"...the book is an excellent analysis of how to approach the ethical dilemmas raised by biotechnology, particularly concerning distributive justice, from the standpoint of liberal theory. This is a big achievement. Buchanan, Brock, Daniels, and Wikler are on to something big." Boston Book Review

"Buchanan, Brock, Daniels, and Wikler--all philosophers, each with different subspecialities in ethics and bioethics--have written a comprehensive, careful, focused, and usefully opinionated book in which they speak in a surprisingly univocal fashion.... the book's nuanced analyses and detailed arguments...are rewarding to work through." The Philosophical Review

"The field of bioethics needs more books like this one." Ethics

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A powerful alliance of government, business, and science is propelling society into a new era in which human beings will possess a much greater understanding of the most basic functions of all forms of life. Read the first page
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Front Cover | Copyright | Table of Contents | Excerpt | Index | Back Cover
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5.0 out of 5 stars The best book for understanding egalitarian eugenics., Jan 19 2001
By 
This review is from: From Chance to Choice: Genetics and Justice (Hardcover)
Every person born is a highly probabilistic creature, having been randomly put together by a chance selection from twenty-three chromosomes from each parent. The combinatorial variation is remarkable even in extremely homogeneous populations, and even more so in multicultural populations where there are great disparities in the average abilities of different groups. Blacks excel in sports of speed leading to their total dominance in professional sports. Jews excel in verbal intelligence leading to their remarkable dominance in law, academics, politics, and the media. And other groups fall in between these group-based genetic differences. However, it is evident throughout this book that these issues will not be dealt with honestly and directly. They will be tip-toed around, especially intelligence.

This book ignores the more communitarian morality of Asian countries and/or western particularistic moral theories. They do take it up in Appendix II, "Methodology." There they state simply that a communitarian moral theory only exists as a condemnation of liberalism -- it does not attempt to put forth its own communitarian moral theory as rigorously as has been put forth by liberalism or a Rawlsian theory. Notice the irony here, that the same charge can be made against those (Gould, Lewontin, Rose, Kamin, et al.) who claim that there is no difference in the average intelligence of races or that genes do not matter. They also, like the communitarian moralists, have only attacked empiricists who have developed sociobiology and intelligence as genetically based. So now we have the kettle calling the stove black.

These authors are concerned that society will become more stratified with regards to genetic capital by various groups. That is, the well-to-do will be able to use genetic engineering to eliminate unwanted genes as well as enhance their children's potential by inserting new "improved" genes into their genetic code -- including altering the germ line genes that will be carried on to successive generations. Is this a fair criticism? Not really, because this is how evolution progresses and it has already occurred as I stated above. Groups, because of breeding are not the same. Again, using the example of Ashkenazi Jews or east Asians who dominate the economies of south Asian countries, multiculturalist societies are already made up of groups who are not equal. Ashkenazi Jews have and average IQ of 117 and live among populations with an average IQ of 100. Malaysians have an average IQ of 90 with a troublesome east Asian minority, that will not assimilate, and has an average IQ of about 106 that dominates the economy. Australians have a troublesome minority of aborigines with a low IQ. These and many other examples show that there is nothing new about some groups eugenically rising above other groups, in terms of intelligence at least. But now that we have new tools at our disposal, those of us who would like to acquire the high intelligence of Ashkenazi Jews for example are told that it is somehow unjust!

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5.0 out of 5 stars Ethics, Eugenics and the human genome, July 12 2000
This review is from: From Chance to Choice: Genetics and Justice (Hardcover)
This book addresses all of the neccessary details of the social ramafications involved with our knowledge of the human genome. In this book, the heart wrenching accounts of America's eugenic movement are powerful enough to move anyone to become actively involved in the issues at hand. A real eye opener, one which makes it painstakingly clear that we are not prepared to deal with the information that we have aquired about ourselves and eachother.
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5.0 out of 5 stars Interpreting Chance to Choice for the Average Joe?, July 3 2000
By 
Tom Redick (San Diego, CA USA) - See all my reviews
This review is from: From Chance to Choice: Genetics and Justice (Hardcover)
I would like to suggest that this book is a landmark in the intellectual history of the human race on a par with Rousseau's Social Contract and Darwin's Origin of the Species. This book is a great achievement for the authors (a "dream team" of practicing bioethicists). I had just enough training in ethics (B.A. Michigan 1982) to understand the book and I enjoyed it immensely.

I wonder, however, whether this book would probably be inaccessible to many readers who should read it. I expect we will need a really thorough set of "Cliff Notes" (or "Genomic Ethics for Dummies"), since this book seems designed to be read by the modern ethical philosopher, moreso than the educated members of the public. Perhaps the reviewers on Amazon.com could provide such a service for the world. I was fortunate to have an advance peek at the book through a conference held in San Diego in January, so I have had some time to reflect on the book's implications.

This book made me intrigued about the prospect for some people using the genome to have better babies (see the book on Designer Babies by Dr. Gosden for the "how to" on in vitro fertilization). Under secular ethical principles, as outlined in this book, do parents have an ethical obligation to use genomic information to have a "healthier" child? If so, what are the ethical boundaries of that obligation? NPR had a report some time ago about some achondroplastic dwarf parents who wanted to choose a child with their genetic "defect" --- is that sometime ethically prohibited by the principles in this book? The parental choice issues raised by this book strike me as the issue ripe for controversy. These are the fundamental questions that this book raises for every member of the human race who plans to procreate (or already has procreated).

My kids will be entering the first generation where prospects for improving admission to the aristocracy (e.g. to an Ivy League school) arguably could begin at the moment of conception (if in vitro, aided by genomic data to screen embryoes). I find that interesting and a little bit alarming.

Chance to Choice also addresses myriad ethical issues (those relating to "distributive justice" in the mode of John Rawls' Theory of Justice) that will spin off from the genome project. They suggest that genetic discrimination (the "genetic ghetto") may arise if we are not careful about how this information is used.

For anyone planning to make a living from the genome, some understanding of this book is essential to their success in business (I am an attorney involved in biotech issues and I think that this book point to (but does not map out) the boundaries of what companies can do with the genome).

My EMail is tredick@chapinlaw.com if anyone interested in discussing this book's implications further. I think that people will be talking about this one until the talking, bipedal genetically enhanced, vegetarian activist cows come home sometime in the next hundred years (just kidding... ;).

I plan to buy some extra copies on Amazon.com to give away or mark up with highlighters (those parts I need to read many times to really understand). It really is a great and timely book.

Tom

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