- Paperback: 160 pages
- Publisher: Tonto Press (Sep 24 2007)
- Language: English
- ISBN-10: 0955218381
- ISBN-13: 978-0955218385
- Product Dimensions: 23 x 15.6 x 1.4 cm
- Shipping Weight: 340 g
- Average Customer Review: 5.0 out of 5 stars See all reviews (1 customer review)
- Amazon Bestsellers Rank: #243,261 in Books (See Top 100 in Books)
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Product Details |
Product Description
Product Description
Jonny Kennedy was the star of the unforgettable Emmy award-winning documentary "The Boy Whose Skin Fell Off". He was an extraordinary character determined to live an ordinary life despite being born with the agonising condition Dystrophic Epidermolysis Bullosa (EB), which meant that his skin could literally fall off at the slightest touch. It was a daily struggle he faced with courage, determination and wit, offering inspiration to millions around the world. Tragically, Jonny was just 36 when he lost a final battle to skin cancer. This is his moving, honest and uplifting story.
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Most helpful customer reviews
5.0 out of 5 stars
An inspiration - a story to pull at your heart strings!,
By
This review is from: Jonny Kennedy: The Story of the Boy Whose Skin Fell Off (Paperback)
We saw the program on TV, and had never heard of this disease before. My husband was away on a trip and I was at home, but we both happened to be watching the proram at the same time - and were both inspired, and moved, by this story. This is a must read, and a story that is takes you from laughter to tears. It is a definite heart warmer...
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Most Helpful Customer Reviews on Amazon.com (beta) Amazon.com:
5.0 out of 5 stars (1 customer review) 2 of 2 people found the following review helpful
5.0 out of 5 stars
Highly recommend,
By H.Spillman "Heidecan" - Published on Amazon.com
This review is from: Jonny Kennedy: The Story of the Boy Whose Skin Fell Off (Paperback)
This book is a wonderful compliment to the 2003 biography on Jonny Kennedy. However, if you did not see the program, the book stands alone as a window into Jonny Kennedy's daily life, both in good times and bad. I do not recall having two intense emotions while reading, sobbing and smiling at the same moment, kudos to Mr Kennedy and Mr Stutter! Please do not miss out on the opportunity to read about this remarkable man.
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