- Hardcover: 166 pages
- Publisher: Marguerite Jones Utley (June 1995)
- Language: English
- ISBN-10: 0964332817
- ISBN-13: 978-0964332812
- Product Dimensions: 21.6 x 14 x 1.5 cm
- Shipping Weight: 318 g
- Average Customer Review: 5.0 out of 5 stars See all reviews (2 customer reviews)
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Product Details |
Product Description
From the Author
When I started to write the book, I found that I actually had very little understanding of the "processes" I went through while experiencing the different symptoms. And I certainly did not find the information in any of the material I researched. So, I sat and thought through what I experienced and wrote it down. No two people experience narcolepsy in exactly the same way, and yet most narcoleptics easily identify with my accounts.
When I gave copies of my book to family members, they were amazed at the scope of the disorder. They knew I got sleepy, and they had seen me colllapse on the floor with cataplectic attacks. But they thought that was all there was to it--until they read the book. Other people with narcolepsy are using the book to explain "their narcolepsy" to family, friends and doctors.
As the title says, narcolepsy is no laughing matter, but some of the situations that arise because of it are "uncontrollably funny." (The title is actually a play on words, since laughter is the most frequent trigger for cataplexy.) Laughter is indeed good medicine, and I invite readers to laugh with me--not at me. There is also great healing power in knowing that others experience the same weird things, and that these weird things are normal for the disorder.
Inside This Book
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First Sentence
EXCESSIVE DAYTIME SLEEPINESS is a complex, multifaceted condition. Read the first page
Front Cover | Copyright | Table of Contents | Excerpt | Back Cover
EXCESSIVE DAYTIME SLEEPINESS is a complex, multifaceted condition. Read the first page
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Concordance
Browse Sample PagesConcordance
Front Cover | Copyright | Table of Contents | Excerpt | Back Cover
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Customer Reviews
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Most helpful customer reviews
5.0 out of 5 stars
Great non-technical primer,
By
This review is from: Narcolepsy: A Funny Disorder That's No Laughing Matter (Paperback)
Utley's book is a tremendous help to those who need to know more about this disorder.She's great in interjecting humor, while at the same time showing empathy for others. The only drawback is that she doesn't explore treatments for all the symptoms (such as hypnagogic hallucinations). If she didn't personally seek treatment for a symptom, she doesn't really list treatment options. It would be helpful if in a future addition, she would share stories from others as well. If you have the disorder or love someone who does, read this. It does not advocate using narcolepsy as an excuse for not living--it tells you how to live with narcolepsy.
5.0 out of 5 stars
Narcolepsy and Life,
By
This review is from: Narcolepsy: A Funny Disorder That's No Laughing Matter (Paperback)
After reading this book I was better able to understand why I go through what I do. Being a person with narcolepsy I applaud Ms. Utley for being able to tell her story and tell it with medical facts, truth, humor, grace and style. It is a must read for patients and their families.
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Most Helpful Customer Reviews on Amazon.com (beta) Amazon.com:
4.8 out of 5 stars (12 customer reviews) 26 of 26 people found the following review helpful
5.0 out of 5 stars
Well-written study of a little-known disorder by a layman.,
By A Customer - Published on Amazon.com
This review is from: Narcolepsy: A Funny Disorder That's No Laughing Matter (Hardcover)
This small book is a must read for both the victim of the disorder and the professionals who treat it. A narcoleptic herself, Utley writes about situations and cases that all of us who suffer with narcolepsy will identify with over and over. She discusses symptoms, medications and their effectiveness and side-effects; the psychological effect of dealing with narcolepsy; how the family can help the victim and how important it is to have loving support; how to deal with both scary- and ever-present episodes of catalepsy, the muscle-weakness that accompanies narcolepsy, and the problems that can ruin any kind of social life. One result of reading the book is that the narcoleptic will be able to say, "Ohmigosh, I didn't realize other people experienced this," or "I didn't know THAT was part of the disorder; why, I've been doing that for years!" The shortcoming in Utley's work is her failure to explain exactly how catalepsy affects various people...she talks about it only in vague generalities -- surprising for someone who invested so much time in spelling out the rest of the circumstances surrounding the average narcoleptic's life. 14 of 14 people found the following review helpful
5.0 out of 5 stars
A balanced treatment of life with an incurable disorder.,
By A Customer - Published on Amazon.com
This review is from: Narcolepsy: A Funny Disorder That's No Laughing Matter (Paperback)
Although this book is biographical in content, it is marvelously reassuring to anyone diagnosed with Narcolepsy. Narcolepsy is indeed no laughing matter, but Ms. Utley does her best to make the reader see the humor and humanity in living with a medical condition that is viciously difficult to explain to those not afflicted.<P>Narcolepsy is a rare disorder of REM sleep, and connecting with others who have the disorder is very difficult. The author's style is insightful and compassionate and enables the reader to connect with a knowledgable member of a very sparse group.
12 of 12 people found the following review helpful
5.0 out of 5 stars
A GOD SEND, A true inspration, there are Angles among us!,
By Tammy - Published on Amazon.com
This review is from: Narcolepsy: A Funny Disorder That's No Laughing Matter (Paperback)
No one can possibly understand another Narcoleptic like one. Most people don't even tell the doctor alot of the symptoms for fear they will be locked away, considered nuts. Ms. Utley is honest and frank. She has a compassion and ability to touch your very soul. I Thank God every day for her and her book. This is a must read and must have book.
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