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Non-Hodgkin's Lymphomas: Making Sense of Diagnosis, Treatment & Options
 
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Non-Hodgkin's Lymphomas: Making Sense of Diagnosis, Treatment & Options [Paperback]

Lorraine Johnston (Author)
5.0 out of 5 stars  See all reviews (3 customer reviews)

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From Library Journal

Johnston, the daughter of a non-Hodgkin's lymphoma survivor and the wife of a Hodgkin's patient, presents a voluminous look at coping with the medical, financial, social, and research aspects of non-Hodgkin's lymphoma. Currently, nothing available in the popular medical literature is exclusively devoted to this topic. Johnston presents clear, up-to-date, and accurate medical information reviewed by specialists in the field. Particularly noteworthy for factual content and readability are the chapters on the non-Hodgkins lymphomas, tests and procedures, the late effects of treatment, relapse, and transplantation. The way patient experiences are braided into the clinical information is especially nice. Unfortunately, the text is undermined by several flaws. First, Johnston's information on drug and medical web sites needs to be more carefully researched; she lists sites such as Clinical Pharmacology Online (CPO) without indicating whether they are free or, like CPO, fee-based and whether consumers or clinical professionals are the intended audience. It is also obvious that Johnston has no expertise in the Medline search process as the strategies she offers would result in literally thousands of citations. It is hoped that for a new edition the author will consult with a medical librarian experienced in this kind of information gathering. Once these flaws are corrected, this book will make a valuable contribution to consumer health collections. (Index not seen.)AGail Hendler, Memorial Sloan Kettering Cancer Ctr., New York
Copyright 1999 Reed Business Information, Inc.

Book Description

Prior to publication of this resource guide, no book on the market targeted the non-Hodgkin's lymphoma survivor's need for understandable information. While there are medical texts on the non-Hodgkin's lymphomas as well as inspirational first-person accounts from survivors of related cancers such as leukemia, between these two sources of information existed a considerable information gap.

In straightforward language and in a format that anticipates the reader's questions, this book addresses diagnosis and its emotional tumult, finding a good oncologist, the theories and practical aspects of treatment, characteristics of non-Hodgkin's lymphomas, side effects and long-term effects of treatment, medical tests and procedures, and prognoses.

Other topics of interest examined are coping with hospitalization, stress and its effects on the immune system, sexuality and fertility after treatment, how to interact successfully with medical personnel, and getting support from family, friends, employers and the broader community. The end of successful treatment and its sometimes surprising effects on one's emotions are covered in a separate chapter, as is the experience of relapse and how to select second-line treatment to regain remission. Clinical trials of promising new therapies grounded in Western medicine are covered in depth. The theories and experiences of marrow transplantation and stem cell support are surveyed. Two frank chapters on recordkeeping, finances, insurance, employment issues, traveling for care, and finding free treatment are included. Throughout the text and in several appendices, the reader is referred to other books, Web sites, and organizations that can provide more detail on a given topic.

This book is intended for both newly diagnosed and long-term survivors of the non-Hodgkin's lymphomas, their caregivers and loved ones, and for medical personnel who interact with survivors of the non-Hodgkin's lymphomas.

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5.0 out of 5 stars For every NHL Patient and Caregiver, Mar 5 2000
By 
Dixie Mitchell (Irvine, California) - See all my reviews
This review is from: Non-Hodgkin's Lymphomas: Making Sense of Diagnosis, Treatment & Options (Paperback)
This book can be recommended to anyone whose life has been changed forever by a diagnosis of NHL. If one is filled with trepidation, not wanting to read the cold, hard facts, he/she can be reassured that reading this particular book will only help one understand and cope with the disease, not scare them to death.

Had it been available when I was first diagnosed, I would have found in one place all the information it took me over two years to gather on my own. It sits by my computer, as necessary as my dictionary for reference. Thank you, Lorraine Johnston, for writing this!

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5.0 out of 5 stars fantastic!, Nov 8 1999
This review is from: Non-Hodgkin's Lymphomas: Making Sense of Diagnosis, Treatment & Options (Paperback)
This is a wonderful, must-have book for any NHL patient. It reads like almost like novel, giving accurate, easy to understand information. I especially like the quotes and antecdotes from the patients themselves; people who have been through it, who "get it"...in their own words. A fantastic resource.
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5.0 out of 5 stars An absolute must for anyone diagnosed with NHL, July 12 1999
This review is from: Non-Hodgkin's Lymphomas: Making Sense of Diagnosis, Treatment & Options (Paperback)
How I wish this book had been available when I first received my diagnosis of Non-Hodgkin's Lymphoma in 1996. It would have answered all those questions I did not even know were lurking in my mind and have taken nearly three years to answer! This book is beautifully and sensitively written; the information is right up-to-date; all aspects of NHL are well-covered. I honestly do not think that the job of communicating about this particular variety of cancer could have been done better. Bravo Lorraine!
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