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Remembering the Music, Forgetting the Words: Travels with Mom in the Land of Dementia [Hardcover]

Kate Whouley
3.0 out of 5 stars  See all reviews (1 customer review)
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Book Description

Sep 6 2011
From the author of the much-loved memoir Cottage for Sale, Must Be Moved comes an engaging and inspiring account of a daughter who must face her mother’s premature decline.
 
In Remembering the Music, Forgetting the Words, Kate Whouley strips away the romantic veneer of mother-daughter love to bare the toothed and tough reality of caring for a parent who is slowly losing her mind. Yet, this is not a dark or dour look at the demon of Alzheimer’s. Whouley shares the trying, the tender, and the sometimes hilarious moments in meeting the challenge also known as Mom.
 
As her mother, Anne, falls into forgetting, Kate remembers for her. In Anne we meet a strong-minded, accidental feminist with a weakness for unreliable men. The first woman to apply for—and win—a department-head position in her school system, Anne was an innovative educator who poured her passion into her work. House-proud too, she made certain her Hummel figurines were dusted and arranged just so. But as her memory falters, so does her housekeeping. Surrounded by stacks of dirty dishes, piles of laundry, and months of unopened mail, Anne needs Kate’s help—but she doesn’t want to relinquish her hard-won independence any more than she wants to give up smoking.
 
Time and time again, Kate must balance Anne’s often nonsensical demands with what she believes are the best decisions for her mother’s comfort and safety. This is familiar territory for anyone who has had to help a loved one in decline, but Kate finds new and different ways to approach her mother and her forgetting. Shuddering under the weight of accumulating bills and her mother’s frustrating, circular arguments, Kate realizes she must push past difficult family history to find compassion, empathy, and good humor.

When the memories, the names, and then the words begin to fade, it is the music that matters most to Kate’s mother. Holding hands after a concert, a flute case slung over Kate’s shoulder, and a shared joke between them, their relationship is healed—even in the face of a dreaded and deadly diagnosis. “Memory,” Kate Whouley writes, “is overrated.”
 

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Review

“In her often humorous and always compassionate memoir, Whouley hopes to transform how people relate to a loved one with Alzheimer's disease."—USA Today

“A lovely, honest account of her mother’s decline into Alzheimer’s disease.”—The Boston Globe

“Whouley’s poignant, perceptive story of remembrance may not make the word 'Alzheimer’s' any easier to hear, but her book offers a perspective that may relieve, comfort and perhaps ease the minds of those who are facing some of the same dilemmas with elder family members – dilemmas about care, yes, but also about just how to take in the idea of communicating with someone who will likely not remember that communication scant moments later.”—The Barnstable Patriot

“Whouley gracefully keeps a balance between poignancy and humor. Her intelligent, sensitive voice is a treat…”—Shelf Awareness 

“Reading Kate Whouley’s memoir felt like sitting down with an old friend over coffee...As a reader, I felt privileged to be on the receiving end of such a confidence, which concerns the most important issues: family, mortality, our aloneness in the world, our connection in the face of it.  I read it in two sittings and turned the last page with regret.”—David Payne, author of Back to Wando Passo  
 
"An exceptional memoir that reminds us—often with surprising humor—of the richness of life in good times and bad."—David Dosa MD, author of Making Rounds With Oscar 
 
Remembering the Music, Forgetting the Words made me want to go hug my mother. It also made me want to go hug Kate Whouley for her generous, fearless and spot-on recounting of a mother-daughter relationship during its most tragic yet poignantly beautiful years.”—Suzanne Strempek Shea, author of Sundays in America               
   
“With books as her background and music as her guide, Kate Whouley helps her mother navigate the journey of Alzheimer’s. Recalling her mother’s impressive past, Whouley tries to reconcile her “new” mother with the old. Whouley’s straightforward, and at times, very funny take at her mother’s struggles and her own will strike home to many readers familiar with the caregiver role. Incorporating her life-long passion as a flutist, Whouley’s tone and reflection of music in every aspect of the journey fills the book with hope and, yes, joy.  I hope I would be as graceful and kind if I ever become my mother’s support system. Full of mother-daughter issues, identity, grief, loss, along with lots of love, and enduring friendships, Remembering The Music, Forgetting the Words is perfect fodder for reading groups!”—Barbara Drummond Mead, Editor of Reading Group Choices
 
Remembering the Music is a dance of a daughter’s spirit as she releases her mother (and the reader) to another realm.”—Joan Anderson, Author of A Year By The Sea     

“In Remembering the Music, Forgetting the Words, Kate Whouley explores the mysteries of the human heart with wisdom and wit, giving us a story rich with kindness and comfort.”Amanda Eyre Ward, author of Close Your Eyes

 

About the Author

Kate Whouley lives on Cape Cod, Massachusetts, where she is the founder and owner of Books in Common, an independent book-industry consulting company. Her first book, Cottage for Sale, Must Be Moved, was a Book Sense Book-of-the-Year nominee. Whouley’s personal essays have appeared in the Cape Cod Times, Boston Globe, and the book-industry online journal Shelf Awareness


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3.0 out of 5 stars Disappointing Oct 19 2011
By Deborah in BC TOP 500 REVIEWER
Format:Hardcover
"Remembering the Music, Forgetting the Words " is a quick and accessible memoir of a daughter's struggle to cope with her mother's battle with Alzheimer's.There is a fair bit of information on Alzheimer's Disease and how to understand and cope with it, which was most helpful .

The strongest, most honest passage in the memoir was this , page 126, "I am not caring for my mother because we are in close enviable harmony. No. In choosing now to care for my mother, I am choosing to do what I would hope some kind hearted person might one day do for me."

Like many of us, author Kate Whouley has had a complex, less than positive relationship with her parent. I appreciated Kate's brutal honesty as something I can take away for myself when dealing with older relatives in my life.

My one caveat: I found the portions of the book devoted to author Kate Whouley's life to be quite dry and uninteresting.
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Amazon.com: 4.5 out of 5 stars  30 reviews
8 of 8 people found the following review helpful
4.0 out of 5 stars A Journey Through Alzheimers From a Daughters Perspective Aug 7 2011
By Pamela V - Published on Amazon.com
Format:Hardcover|Amazon Vine™ Review
Remembering the Music, Forgetting the Words, by Kate Whouley, is a daughters story of her experiences dealing with her mothers organic brain syndrome, aka Alzheimers disease. Kate, the only child of vibrant drama-teacher Anne, was faced with making decisions about her mothers care when the common symptoms of dementia began manifesting themselves : inadequate attention to personal hygiene, nourishment and attention to household maintenance.

Interspersed with details of the authors life as an author and flutist, the book kept me interested from beginning to end. I am a nurse in a rehab facility and work with dementia patients daily, and this book was realistic even to me. Another reviewer remarked that Whouley sent her mother to an assisted living facility too early, but that is a personal decision that cannot be judged by others. It sounds to me like Anne was doing well at the assisted living facility, and that it worked well for her. It often takes three shifts of personnel to care for a dementia patient. No one person should be expected to care for someone with OBS. This is not about being a hero.

I found this book to be interesting and well written. You can tell the author loves her mother, despite their differences and the unattractive verbal outbursts that her mother bestowed upon her, as many dementia patients bestow on loved ones and caregivers. The author exhibits some guilt in placing her mother in an assisted living facility, and that is common. She took the necessary steps to ensure her mothers safety. There aren't that many solutions to a very complex problem.

This book will be helpful for anyone caring for a loved one with dementia, who feels like reading about someone with a common issue. It will clarify and outline the most commonly taken steps for families with organic brain disease : limited assistance, assisted living, long-term care. It always helps to know you are not alone.
10 of 11 people found the following review helpful
4.0 out of 5 stars A MOVING MEMOIR Aug 2 2011
By Bob S. - Published on Amazon.com
Format:Hardcover|Amazon Vine™ Review
This is a very personal and moving remembrance of the writer's mother facing Alzheimer's. Kate Whouley recreates her slow realization that her mother's day-by-day loss of ability to handle her mail and her money, endless repetitions, her unpredictable anger at her daughter, even her inability to eat and drink, add up to the dread diagnosis. Whouley honors her mother in this portrait while helping us understand more about this unthinkable disease.
5 of 5 people found the following review helpful
4.0 out of 5 stars A Fresh Perspective on Dealing with the Demanding, Debilitating Journey in the World of Dementia Caregiving Aug 30 2011
By Richard R. Blake - Published on Amazon.com
Format:Hardcover|Amazon Vine™ Review
I am no stranger to the difficulties and demands of the dreaded Alzheimer's disease. Aging friends and loyal family members offer encouragement, affirmation, and support on the journey we are all experiencing together.

Kate Whouley's "Remembering the Music, Forgetting the Word" is a gripping account of the impact of dementia on both victims and their family. She writes candidly of the trials in the relationship with her mother; openly expressing her frustration, anxiety, and the demands of being the primary caregiver for a loved one "lost in the land of dementia."

Kate carefully weaves a parallel of her love for music into helping to understand her mother's illness, their relationship, and the importance of living in the quality of the moment.

Whouley writes with passion, understanding, and insight. "Remembering the Music" is not a text book or how to book - but a fresh perspective from a fellow traveler. I found in Kate's writing another source of encouragement, affirmation, and support from a fresh perspective.

An important resource for adult children of parents struggling to find their way in the land of dementia.
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