- Paperback: 86 pages
- Publisher: Better Endings New Beginnings (April 2000)
- Language: English
- ISBN-10: 096370723X
- ISBN-13: 978-0963707239
- Product Dimensions: 21.1 x 14.7 x 2.8 cm
- Shipping Weight: 159 g
- Average Customer Review: 5.0 out of 5 stars See all reviews (2 customer reviews)
- Amazon Bestsellers Rank: #322,086 in Books (See Top 100 in Books)
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Product Details |
Product Description
Book Description
A young teen with Fetal Alcohol Effects challenges the world to peer inside her life and brain. Through her own writings the reader is taken on a life changing journey that will impact their thinking about how to help and understand children with brain damage due to Fetal Alcohol.
From the Author
"Mom, I want to write a book anout what it's like to have FAS/E (fetal alcohol syndrome/effects) I think people need to know ... and so began Liz's and my journey in writing The Best I Can Be - Living with Fetal Alcohol Syndrome or Effects. Liz was right, it was a story that needed to be told. Fetal Alcohol Exposure is a leading cause of mental retardation in the western world. It is estimated that one out of 10,000* children born each year in the United States as FAS (Fetal Alcohol Syndrome) and one out of 100** hve FAE (fetal alcohol effects). Research and experience has proven one label is not better or worse than the other. Over 40,000 newborn US children each year will have to learn to cope with this disability. It is time we came out of denial - alcohol consumption during pregnancy is not safe. Let Liz and I take you on our journey - it is a journey of hope, of dedication and of perseverance.
Thank you Liz for your courage to share your story.
**Teratology 1997, Nov.
Inside This Book
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First Sentence
Like so many stories, this story began long ago on another fall day when life for our family was very different. Read the first page
Front Cover | Copyright | Table of Contents | Excerpt | Back Cover
Like so many stories, this story began long ago on another fall day when life for our family was very different. Read the first page
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Concordance
Browse Sample PagesConcordance
Front Cover | Copyright | Table of Contents | Excerpt | Back Cover
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Most helpful customer reviews
2 of 2 people found the following review helpful
5.0 out of 5 stars
The Best I Can Be,
By Claudia Barker (Bastrop, TX) - See all my reviews
This review is from: The Best I Can Be: Living With Fetal Alcohol Syndrome-Effects (Paperback)
This is a wonderful little book written by a mother and daughter. The daughter has Fetal Alcohol Spectrum Disorders, and this is their journey together, from both of their perspectives, in living with these disabilities. Very insightful and full of parenting tips for others in this situation. Teachers and health care professionals would gain great insight by reading this as well.
5.0 out of 5 stars
Wonderful,
This review is from: The Best I Can Be: Living With Fetal Alcohol Syndrome-Effects (Paperback)
A look at FAS/E from a personal point of view. What a great way of getting the message of how FAS/E affects children, out into the world!
Share your thoughts with other customers: Create your own review
Most Helpful Customer Reviews on Amazon.com (beta) Amazon.com:
4.9 out of 5 stars (15 customer reviews) 24 of 24 people found the following review helpful
5.0 out of 5 stars
An incredible resource on FAS, from a family's perspective,
By Laura S. Heiman - Published on Amazon.com
Amazon Verified Purchase(What's this?)
This review is from: The Best I Can Be: Living With Fetal Alcohol Syndrome-Effects (Paperback)
This book tells the story of a girl who suffers from FAS, and her journey with her adoptive parents towards education and independence. One of the best handbooks I've read on the subject; short, but packed with information, thorough lists of resources, homeschool supplies that worked, etc., and, most valuable of all, a family's perspective on the trials and successes of dealing with this syndrome. Liz, the daughter, was adopted soon after birth, and couldn't stand being touched until nearly her 10th year. Her parents homeschooled her from fourth grade on, after finding that the schools couldn't really give their daughter the help she needed. There are segments written by Liz throughout the book, written in her own hand, about her struggles, difficulties, and successes. This book is hard to find in libraries, but it is, in its own way, as important and valuable as Streissguth's books, and far more immediate and touching. Read this!!
18 of 18 people found the following review helpful
5.0 out of 5 stars
If we only saw this book sooner,
By boo boo - Published on Amazon.com
Amazon Verified Purchase(What's this?)
This review is from: The Best I Can Be: Living With Fetal Alcohol Syndrome-Effects (Paperback)
Your book was the missing piece of information for our adopted daughter who's birthmom is an alcoholic. As a nurse and a doctor we were unable to find what was wrong with our daughter-no other professionals we took her to knew what was wrong. Every thing written in this book could have been written about our daughter and if we had gotten this information sooner we would have had a different point of view for her behavior and learning problems. We were not taught about FAS/FAE in nursing/medical school. This information needs to be learned at that level in order to assist with an early diagnosis and life planning for the child to avoid what we went through- 15 different schools in 10 years.
11 of 11 people found the following review helpful
5.0 out of 5 stars
Must Read for parents who adopt and for professionals who work with kids,
By Jane Hinrichs "Writer and Ghost." - Published on Amazon.com
Amazon Verified Purchase(What's this?)
This review is from: The Best I Can Be: Living With Fetal Alcohol Syndrome-Effects (Paperback)
This book is fantastic! It explains Fetal Alcohol Syndrome/Effects, and gives the reader understanding and tools to use to work with people who have FAS/E and also how to love and accept them and appreciate them as they are. I have an adopted son with FAE and when I first realized he had this I was very discouraged because all I had heard about FAS/E was so negative. I didn't know if I would be successful being the mom he needed me to be. This book gave me such insight. It also showed me that some of what I have dealt with with my son is normal and it is okay. It is a book that celebrates life in all its forms -- even the challenging form FAS/E creates. Thank you to Liz and Jodee Kulp for sharing their life with us.
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