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Not Fade Away: A Memoir of Senses Lost and Found Hardcover – Sep 11 2014
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Praise for Not Fade Away
"A remarkable story of resilience and heart, Not Fade Away follows Rebecca Alexander as she must navigate the world cursed with a rare genetic disorder that will one day rob her of both sight and hearing. Bereft of self-pity, funny, and bursting with honesty, Not Fade Away will get its hooks in you. I promise that by the end of her story, you will fall just as in love with Rebecca as I have."
—Susannah Cahalan, New York Times bestselling author of Brain on Fire
"Her eyes and ears may be declining, but Rebecca's sense of self is sharply focused and profoundly tuned. By sharing her life, she has enriched mine and will yours, too. I love this woman."
"There is a saying that goes—you never know how strong you are until being strong is the only choice you have. Rebecca Alexander's indomitable spirit spills out on to the pages of this incredible memoir. She will lift you up...the way she did for me."
—Hoda Kotb, New York Times bestselling author of Ten Years Later and Hoda, and Emmy-award-winning anchor of the Today show
“An honest and eloquent look at life … Alexander emphasized the importance of embracing the here and now, of being present and grateful for the gift of life, in whatever shape it might take.”
“Profoundly inspiring … [Rebecca’s] ability to find so much to be grateful for after being dealt such an unfair hand challenges those of us with far fewer hardships to treat each day as a gift.”
“Wise and realistic instruction in intentional living, grace, and overcoming obstacles great and small.”
About the Author
Rebecca Alexander, thirty-four, is a psychotherapist, spin instructor, volunteer, and an extreme athlete who is almost completely blind and deaf. Born and raised in the San Francisco Bay Area, she currently lives in New York City.See all Product Description
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Top Customer Reviews
and strength that, I just had to read her whole story. An excellent read, written
in narrative style and very hard to put down. I would recommend it to anyone
who has faced adversity with strength and faith.
Most Helpful Customer Reviews on Amazon.com (beta)
Lisa Katz Shimoni
What starts as a truly unique couldn't write this sh*t if you tried kind of story, quickly reveals itself to be full of humor, humanity and the universal truths and questions we all face. I felt as if I was sitting across from Rebecca being happily bombarded by her contagious humor and zest for life. Her personality, honesty and relatable experiences jump off each page, prompting the reader to consider not only their own blessings and challenges, but the larger questions about being the best friends, sisters/brothers, lovers and people we can be.
We all stand to learn so much from those like Rebecca who are brave enough not only to live life SO large but also to share each moment so honestly with the world. Every anecdote in this book is a reminder of how adaptable, resilient and downright loving we can all choose to be when given the choice. Not a light read to be sure, but as only Rebecca can, this book takes the scariest and loneliest aspects of our lives and creates space for laughter, love and hope. A GREAT read.
Not Fade Away is an example of one of those books you just can't. put. down.
Rebecca's stories are candid and detailed..almost as if she's personally speaking to you and only you.
Reading this book makes me want to live life the way Rebecca does. She is so strong, determined, and quite witty. After all that she's gone through, Rebecca's message is clear--to live in the moment. To capture the moment. Be thankful for what you do have. Everyone has their own issues, and Not Fade Away is a reminder that you're not alone in this world. With great family, friends, and some good humor..you can conquer anything.
I highly recommend this book--I know everyone will agree and love it as much as I did.
She received the news when she was 19-years-old. Now she is 31, and still has some of both senses left. The time remaining until she reaches the unhappy end of not being able to see has been pushed out 10 years to the age of 40. In the meantime there is hopeful research underway that could result in some sight being saved. There is hope that she won't go totally deaf thanks to recent cochlear implantation.
Rebecca was born with the condition known as Usher Syndrome Type III, a rare genetic disorder. Those who are born with it face a destiny of both deafness and blindness. Rebecca was born with good visual and aural capacity. The diminishing visual and hearing capacities have come gradually. Yet she has remained strong through all the adversity, and her story is truly inspirational.
This young woman tells of many other things that have happened in her life, some of which have been very difficult to endure. Through it all she has not given up. It is apparent that no matter what happens, she is going to be ready to meet the challenges. The story is one that is uplifting, and a real page-turner. Rebecca is moving forward with her life, and she is a shining example for all of us.