Sick And Tired Of Feeling Sick And Tired: Living With Invisible Chronic Illness Hardcover – Nov 3 1992
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From Library Journal
Donoghue and Siegel direct their book to healthcare providers, families, and patients dealing with invisible chronic illness (ICI)--those conditions that are chronic and disabling but not readily apparent to the casual observer. In Part 1, the authors define ICI, including brief descriptions of 13 diseases that fit their criteria. They discuss in clinical, detached language the impact of ICI on the patient, family, friends, and employers. In Part 2, Donoghue and Siegel speak directly to the patient, offering coping mechanisms to enhance quality of life through positive thinking, effective communication, and pain management techniques. They also include reading lists and "Illness Associations." While useful, their book suffers from the attempt to address too broad an audience. Recommended for larger collections only.
- Janet M. Schneider, James A. Haley Veterans Hosp., Tampa, Fla.
Copyright 1992 Reed Business Information, Inc.
An invaluable source of help and comfort to those who suffer from invisible chronic illness and to their caregivers and friends. -- Katherina Dalton, M.D.
One of the most helpful books about chronic illness that I ever run across....This book is captivating, informative, and sensitive. -- Allergy Aware --This text refers to an out of print or unavailable edition of this title.
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Top Customer Reviews
This book is great, probably, if you have a non-severe and/or relapsing and remitting disease. But I found very little here for coping with very severe disease with no breaks!
The book very much asssumes throughout that patients will have periods of illness and then periods of wellness, or at least periods of being slightly less unwell.
This just does not apply to Myalgic Encepahlomyelitis, and especially severe M.E. - nor to many other diseases I am sure. As such for those of us who fit this description, much of the advice in the book is inappropriate and can't be used and is also slightly depressing. (To read a book which assumes you'll have better health periods now and then, when this isn't the case and hasn't been for many years can make you feel a bit sad.)
The problem of being bedbound, housebound or unable to speak for long periods, or write or have visitors, is also not mentioned at all.
I don't mean all this even as a criticism of the book really, as I am sure this book is suitable for many poeple and the authors had to write what they knew. Also, when a book has 'invisible illness'in the title, I suppose this does to some extent suggest it covers diseases which do not leave you obviously visibly ill such as bedbound or housebound. That would be a very fair point as well of course. (Although many other diseases the book discusses are called invisible when really the patients do look ill, perhaps just not 'ill enough' for how disabled they are for some critical bystanders!Read more ›
This book totally understands my experience, it validates every thing that has happened since I was diagnosed, and it helps me get the support I need. It is also excellent to give to others who you want to understand what you're going through. After reading this book, it will be impossible for anyone to ever say again "but you LOOK good".
I had an appt. with a doctor the other day and he saw the book in my hand and asked to look at it. He asked my opinion on it and said he had heard it was a great book. So I of course gushed on and on about it, how the authors truly understand the effects if ICI on our self-esteem, self-concept, the guilt and shame, the frustrations, the lack of support and the suspicion we are often confronted with because our symptoms are not visible (we don't have a wheel chair or a cane, or an easily recognizable condition). So he's going to buy it so he can understand what his patients are going through and be more helpful to them!
Next I am passing this book onto my husband, might buy a few copies for relatives for Christmas and sending the link to the members of my chronic pain support group. Pass the word, this is the book that will finally change how the world responds to us.
The real purpose of this book is to help people whose conditions are "invisible," and therefore ignored or underplayed in their daily lives and relationships. I would imagine that anyone who has an ICI has experienced at least once the "You're sick? You look all pink and healthy!" comment from a well-meaning friend. Actually, it's your medication, your lupus rash, or a chronic fever that gives you that oh-so-rosy glow. If this has ever happened to you or to a loved one, you will get a lot out of reading this book and realizing that you're not alone and that there are ways of coping with your condition.
This book does have strong points, don't get me wrong. The premise that "consciousness of your story can free you to understand yourself more deeply and to change in directions that make your life more livable" is very true and the authors strongly encourage individual therapy to support people in their quest for mental health during a chronic illness. The chapter on empathic listening is one of the most constructive tools I've seen in this type of book yet, and would be a boon to relationships in which no chronic illness was present! However, with two authors and often disjointed chapters and writing, I wondered about the sophistication of editing this book experienced. My recommendation would be to turn to other sources before consulting this one.
Most recent customer reviews
"Great book! I've been sick since I was 17, I am now 31 and it is the first time that I feel understood! Every page I'm like: '' Yes. Yes, this is exactly how is is! Read morePublished on Aug. 2 2013 by Mariane
I have 2 ICI's and I have struggled with a large amount of self doubt and sadness, because of other people's inability to understand what I am dealing with. Read morePublished on Jan. 15 2004 by Shopping Addiction
Unlike a lot of books with this theme, this one seems to do a good job of ferreting out the different ways that people deal with chronic illness. Read morePublished on April 23 2002
This is without a doubt the best book on chronic illness I have ever read. It is written well and is easy to read. Read morePublished on July 5 2000 by Mark J. Driscoll
During 25 years of practice in clinical psychology I have found few books as helpful as this one. It does what I have always held to be the central idea of my work; to integrate... Read morePublished on March 19 2000
I was eating healthy, exercising regularly, and getting plenty of rest - but because of my Cronic Illness, I constantly felt tired. Read morePublished on Jan. 12 2000
I found this book extremely helpful, not only as a sufferer of CFS and fibromyalgia, but as a nurse caring for many patients with many chronic illnesses. Read morePublished on Dec 31 1999 by Nanci
I have been a CFIDS "survivor" for two years now. Living in a small town, I am one of very very few CFIDS patients. Read morePublished on Dec 16 1999
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